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PostPosted: Fri Oct 17, 2008 9:54 pm 

Joined: Sat Sep 27, 2008 4:41 pm
Posts: 10
Location: USA
I posted a few days ago, and no one responded to having any knowledge and experience with eosinophilic esophagitis. Not that I wish this on anyone, but it really is becoming more common, so I am sure someone must have some experience. Also, I read recently that diagnoses of the condtion are on the rise in Canada. I discovered the Canadian Council on Eosinophilc Disorders. They are helping find medical resources in Montreal. But I am just reaching out again.

We may move to Montreal, but I can't fathom doing so, if there are not decent medical resources for this condition. This might mean refusing a job transfer. That is a scary proposition in this economy.

Hope someone knows someone who knows someone.......

Mom2Boys, one with digestive allergies

 Post subject:
PostPosted: Sat Oct 18, 2008 6:29 am 
Site Admin

Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6616
Location: Ottawa
You may have missed this reply in the travel section.
Andrea_MASG said
Hi, Mom2Boys. I run the support group in Mtl. We used to have meetings but have no meeting space at this time. I'm hoping this will change in the near future. We do have an online e-mail list, and I provide telephone support to those who need it. I'm familiar with EG and EE. Feel free to send a PM any time.

Could you ask you current specialist for a referral? He/she may know of some specialist in Montreal. Montreal is a major city with an excellent university. I would be very surprised if they did not have specialists in this field.

Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy and green beans) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: Oral Allergy Syndrome, Allergic to Birch trees

 Post subject: EE in Cincinnati
PostPosted: Thu Oct 30, 2008 12:58 pm 

Joined: Fri May 16, 2008 11:35 am
Posts: 12
Location: Cincinnati OH
Mom2boys...check Cincinnati Children's Hospital. They are building an EE specific clinic. They do a lot of EE research.

Mom of 6 boys
self-allergic to fruit and lactose
3 sons lactose intolerant/ milk protein intolerant
3 sons allergic to various antibiotics
1 son allergic to fish, shellfish,peas, dogs, and dustmites
1 son allergic to basically the outdoors

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