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PostPosted: Wed Apr 09, 2008 10:48 pm 
Site Admin

Joined: Tue Mar 22, 2005 11:17 pm
Posts: 6616
Location: Ottawa
There is a study on the support needs of children and teens. It is a collaborative effort of several universities across Canada and is funded by AllerGen. For those who may be interested the information follows.

Dear parent of a child with anaphylaxis,

We are inviting you and your family to help design and/or participate
in a fun and innovative program for children and teens with anaphylaxis
or asthma that aims to increase their quality of life by:
§ increasing social networks,
§ improving coping skills, and
§ improving risk management and health behaviours.

We are currently conducting mail-out surveys with teens (ages 12-15)
and interviews with children (ages 7-11) and their parents to find out
more about their support needs. Additionally, we are looking for young
adults ages 17-20 who would be interested in becoming online peer
mentors for teens with asthma/anaphylaxis. Training, support and a
certificate of completion would be provided for all peer mentors.

This project is funded by AllerGen and works with scientists from many
Canadian universities including, Alberta, Athabasca, British Columbia,
McMaster, New Brunswick, and Toronto. This project has received
approval from the appropriate research ethics boards.

You can help us by completing a brief online survey to give us your
contact information by clicking on the following link: ... QhOQ_3d_3d

Someone from our research team will then contact you to tell you more
about the study and schedule a time where we can ask questions about you
and/or your child with anaphylaxis. Your participation is completely
voluntary. For more information about our research team, or this study,
please visit our website at

Through your participation we hope to design innovative and relevant
support programs for children and teens with anaphylaxis and /or asthma
and their parents. If you have any questions or concerns about
completing the survey or about your participation in this study, you may

Jody Macdonald, Research Coordinator
Social Support Research Program
University of Alberta
T: 1-866-427-4805 (toll free) or (780) 492-8945 (direct line)

Thank you very much for your time and effort, it is truly appreciated!

Daughter: asthma, allergies to egg, milk, peanuts, tree nuts, most legumes (not soy and green beans) & penicillin. Developing hayfever type allergies.
Husband: no allergies
Me: Oral Allergy Syndrome, Allergic to Birch trees

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